The Global Patient Advocacy Lead reports to the VP, Head of Medical Affairs and is part of the Medical Affairs Leadership Team. This individual will lead the company’s efforts in building trusted, long-term relationships with patient organizations and communities in hereditary angioedema (HAE) and ATTR Amyloidosis though two-way communication and collaboration to advance shared priorities. This role will have an externally facing component, including engagement with patients, advocacy organizations and other key stakeholders, and will be expected to work collaboratively across the organization. The Global Patient Advocacy Lead will provide strategic leadership, mentorship, and operational oversight, ensuring the patient voice is integrated into all areas of the organization, while also overseeing the functional structure and development of a high-performing Patient Advocacy team.

Duties/Responsibilities

• Develop and implement a coordinated global patient advocacy strategy for all of Intellia’s rare disease programs, aligning with corporate goals and priorities based on deep understanding of the patient/carer experience and unmet needs

• Serve as an organizational expert on patient advocacy, providing insights, best practices, and guidance across teams within the strategic therapeutic area of responsibility

• Build and lead a high-performing Patient Advocacy team, fostering a culture of collaboration, innovation, and patient-centered thinking

• Identify and implement operational improvements to enhance the team’s efficiency, effectiveness, and engagement with internal and external stakeholders.

• Cultivate enduring relationships with leading patient organizations to advance Intellia program objectives

• Drive an innovative, cross-functional approach to community partnerships aligned with Intellia program-related priorities

• Collaborate with patient community to generate patient-experience data that shapes clinical practice and advances access

• Ensure patient/caregiver insights and implications for Intellia programs are systematically actioned across Medical Affairs and with cross-functional partners

• Advance Intellia program-related priorities through compliant sponsorships, educational grants, and execution of program benefits

• Be responsible for the annual budget related to program patient advocacy initiatives

• Adhere to relevant internal policies and industry regulations

• Partner with patient organizations to educate and mobilize patients to seek optimal care and elevate the voice of the patient to inform decisionmakers in the patient treatment journey, including HCPs, policymakers and payers

• Monitor and evaluate performance to achieve and maintain best-in-class outcomes, while being fully compliant

Supervisory Responsibilities

• Recruits, interviews, hires, and trains new staff

• Oversees the daily workflow of the department

• Provides constructive and timely performance evaluations

• Handles discipline and termination of employees in accordance with

company policy

Requirements

Skills/Abilities

• Demonstrated ability to create buy-in and gain consensus and alignment across teams and individuals.

• Exceptional oral, written, interpersonal, and presentation skills, with experience engaging with senior leaders.

• Proven ability to establish and maintain strategic partnerships with advocacy groups, patient leaders, and caregivers

• Solid business acumen with the ability to direct and manage vendors to ensure successful implementation of initiatives.

• Strong budget management competencies and skills in successful negotiation.

• Consistently represents the company with the utmost level of professionalism with internal and external stakeholders.

Education / Certifications

• An undergraduate degree is required; a graduate degree in a relevant area such as nursing, pharmacy, genetic counseling, social work, public policy, or public health is preferred.

Experience

• 10+ years of experience in the bio-pharmaceutical environment with at least 7 years of relevant experience in rare disease and patient advocacy

• 5+ years of experience leading and developing teams, with demonstrated success in building high-performing functions.

• In-depth understanding of the healthcare, pharmaceutical, and biotechnology industry is required. Solid understanding of relevant regulations and guidelines (e.g., FDA, EMA)

• Willingness to travel (role anticipated to have about ~25% travel component)

Physical Requirements

Ability to sit or stand for multiple hours at a computer

Manual dexterity for keyboarding; may include repetitive movements

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Covid-19 Vaccination Policy: All Intellia employees, regardless of work location, are expected to follow all applicable federal, state, and local public health regulations and guidelines, and are strongly encouraged to follow all public health recommendations, including being vaccinated for COVID-19.

EEOC Statement: Intellia believes in a diverse environment, and is committed to equal employment opportunity for all its employees and qualified applicants. We do not discriminate in recruitment, hiring, training, promotion or any other employment practices for reasons of race, color, religion, gender, national origin, age, sexual orientation, marital or veteran status, disability, or any other legally protected status. Intellia will make reasonable accommodations for qualified individuals with known disabilities, in accordance with applicable law.